Finding her path through art

November 08, 2011 By: admin Category: Transition Sub-Committee, Uncategorized

Young woman with autism expresses herself through art
Petaluman Julia Pozsgai, 22, has autism, but has excelled in the craft of woodworking. Among her many projects is this coffee table.

Terry Hankins
By BECCA PILKINGTON,
ARGUS-COURIER INTERN

Published: Monday, October 31, 2011 at 3:00 a.m.
Last Modified: Friday, November 4, 2011 at 12:02 p.m.
In Julia Pozsgai’s bedroom is a large purple chair. Though she made it herself out of heavy cardboard, its tall back, exaggerated zig-zag design on the back and feet, and royal purple hue make it look more like a whimsical throne than a large piece of cardboard. Pozsgai sits in it to demonstrate its sturdiness, like a proud queen.

What makes this queen even more impressive is, at 18 months old, Pozsgai was diagnosed as being at risk for autism.

“We got her in a program right away,” said Karen Short, Pozsgai’s mother. “We lived in San Francisco and I had a friend who worked for a program that worked with young kids. They started working with her on everything — language and the whole range of potential problems, all the things that could happen.”

As Pozsgai got older, the San Francisco Unified School District recommended that the family move to Marin County so she could attend Marindale School in San Rafael, which had a teacher that worked with special needs children, for preschool. When Pozsgai moved on to kindergarten, teachers advocated for her that she remain in the regular classroom and not be segregated from her peers. From kindergarten to high school, Pozsgai was included with regular students until she graduated from Casa Grande High School.

“She was very fortunate with the school system,” said Short. “We had our differences, but they were supportive. We worked with them.”

Short also credits Pozsgai being integrated with regular kids while in school as a factor in her success thus far.

“The community has been great. I think a lot of the kids she went to high school with know her, and some of them definitely tried to include her as much as they were able,” she added.

It was at Casa Grande that Pozsgai took a sculpture class, where she first learned how to make cardboard chairs.

“I liked that class,” she said.

Today, Pozsgai, now 22, still makes cardboard chairs — an interesting process that, Short says, Pozsgai has refined.

After Pozsgai graduated high school, Short felt there was a lack of programs for adults with autism in the area. After a casual conversation with an employee from Cypress School in Petaluma, Short looked into Autistry Studios in San Rafael.

“I was pretty impressed with the program, pretty much because it was a group that was being challenged,” she explained.

That constant challenge is the goal to help autistic adults, whose communication and social skills are not strong, succeed, according to executive director Janet Lawson.

“We’ve found that autistic individuals of all ages continue to grow when appropriately challenged,” Laweson explained in an e-mail interview. “We believe it is important to have high expectations and then provide the tools, support and resources needed to be productive.”

In her experience with Pozsgai, Short knows firsthand that autism can be isolating for young adults.

“When you have autism, you’re literally trained to be socially appropriate,” she said. “You don’t learn from your peers in the same way; it has to be pointed out — ‘This is what’s OK, this is what’s not OK,’ because you just don’t pick it up.”

According to Lawson, she first met Julia in March at a fund-raising event. She felt that, while Pozsgai was very excited and had a great time, it was difficult to tell if she would be a good candidate for Autistry.

“My first impression of Julia was that she had great enthusiasm and incredible drive,” she said. “My concern was whether or not she wanted to develop her skills or if she wanted to stay in her comfort zone.”

Pozsgai starting attending workshops at Autistry Studios in June. Lawson noticed she was already good at making chairs out of heavy cardboard, but she had not worked with wood.

“We wanted to challenge her to increase her ability and expand her skills,” said Lawson. “We asked if she would like to work in wood and learn how to use power tools. She was hesitant at first, but agreed to give it a try. She has never looked back.”

Now, with the help of Autistry Studios, Pozsgai has moved on to working with wood and building wood furniture.

Currently, Pozsgai has started working on a custom ordered dog house — her third woodworking piece. It will have two windows — one on each side— and four walls, where the front wall has a doorway so the dog can get in and out. It also has a deck, so the dog can lay on the deck.

Despite Pozsgai’s autism, Short wants people to remember that there is a person in there — a person who, as Lawson describes, is optimistic and tenacious.

“It takes courage to change and Julia is courageous. We have challenged her to rise to a higher level of production, take her work to higher standard and she has met that challenge and more,” she said. “We all believe in her ability and she has shown us that she is very capable.”

Short is nothing short of proud at her daughter’s success and accomplishments.

“Autistry just pushes her and challenges Julia, and she’s thrilled with learning about all the tools,” she said with a smile. “I, of course, don’t know these tools, but she does.”

Welcome New MAC Coordinator!

November 08, 2011 By: admin Category: Uncategorized

We would like to take this opportunity to welcome Meg Cadiz as our new MAC Coordinator. Meg has worked in non-profit administration for 10 years in the field of Early Childhood Education. Meg’s many years of experience working with children, families, service providers and support professionals will aid in serving the Collaborative and its many partners. Meg is thrilled to bring her enthusiasm and energy to the position that Katrina Ferreyra so generously supported for the past several years.

MAC Youth Sub-Committee September 2011 Meeting

October 19, 2011 By: admin Category: Youth Sub-Committee

The MAC Youth Sub-Committee met on Septemer 20, 2011. Attendees included: Monica Guzman, graduate student OT Dominican; Stacy Frauwirth, OT Faculty, Dominican University; Rocio Smith, Area Board 5; Penny Valentine, Marin SELPA Director; Ingrid Sigarreta, Matrix; and, Karen Kaplan.

Goal of Committee This School Year
To understand the needs of the underserved in our county facing the challenges of Autism Spectrum Disorder.

The committee agreed, the following are the list of identified underserved in Marin County

  • Low income
  • Children of color
  • Financially challenged families
  • Emotionally challenged families
  • Language barriers
  • Foster care children
  • At risk children
  • Homeless

The Committee further described those at Risk being children who are not obviously identified early, those that are too high functioning and are not qualifying early, those affected by drugs, those where parents lack effective parenting skills.

The underserved are…

  • Underinsured
  • They have cultural barriers
  •  They have challenges interacting with Health Care agencies

They do not understand disabilities

They are underserved because…

  • There is inadequate specialty services
  • There is inadequate diagnostic services (the system of Rule Out may be a negative approach)
  • They are uninsured and non-insured
  • Lack of transportation
  • Materials are printed at too high educational levels
  • They are isolated (socially and geographically)
  • They have cultural barriers that may affect their interaction with health care and acceptance of a disability
  • There are language barriers (language and style)
  • Their immigration status might be preventing connections (without benefit of papers)
  • Funding changes and changes in qualifications for services
  • Asperger may go undiagnosed for years

They are found throughout Marin but in a few key pockets, such as…

  • Marin City
  • Canal and other parts of San Rafael
  • Novato
  • West Marin (Nacasio, Inverness)

What do we think they need?

  • Stability
  • Access to consistent, affordable and culturally accepting health care
  • A need for a Medical Home (coordination)
  • Disability information that is meaningful, understood, presented by trusting members of the community and experienced people
  • A Plan/road map geared towards their son or daughter specific profile
  • Cultural Acceptance and support
  • Services that are language and culturally appropriate as well as affordable in their own community

Two questions came up during our discussion of needs

  • Who are the service providers who assess and serve in other languages other than English in our county?
  • What printed materials and web site are available with information on Autism in other languages? (CDC, TACA, CADDRE, Autism Society, NICHD, NINDS, Autism Speaks)

Action Plan

  • Invite others to our committee to help us identify needs
  • Invite others to our committee to help us identify projects the committee can engage in this year addressing the underserved
  • October 18th, next meet 9 am to 11 am at the Connection Center in San Rafael
  • Dominican Graduate Students will be involved in collaborating on identified projects
  • Penny Valentine will identify if districts and counties have bi-lingual SLP, OT, PT and educational Psychologists providing evaluations, support to teachers and families.

Karen Kaplan
karensupportsu@comcast.net
415-497-3751
www.karenkaplanasd.com

Dominican University Autism Spectrum Disorders Added Authorization Program for Teachers

June 28, 2011 By: admin Category: Resources for Professionals

Dominican University now offers an Autism Spectrum Disorders Added Authorization program, which is designed for individuals interested in teaching students with autism spectrum disorders. Candidates accepted into this Added Authorization program must currently hold an Education Specialist Level I teaching credential or be eligible for an Education Specialist Level I teaching credential prior to recommendation for the Added Authorization. For more info, please visit the Dominican University program page.

Lessons in Compassion

May 05, 2011 By: admin Category: Early Years Sub-Committee, Resources for Parents, Resources for Professionals, Youth Sub-Committee

This is a great article on compassion for children with autism and how to teach tolerance among our children.

MAC Youth Sub-Committee April Meeting

May 05, 2011 By: admin Category: Youth Sub-Committee

April 26, 2011 Notes from Marin Autism Collaborative Youth Sub-Committee

Dear Marin Autism Community:
Today was our last meeting of the school year. Thanks so much for all your participation this year. We will meet once again in September but at a NEW LOCATION The Marin County ConnectionCenter at 3240 Kerner Blvd. San Rafael, 94901.

The dates for the fall are Tuesday September 19, Tuesday October 18 and Tuesday, November 29th. Our meeting time is still 9:30 am to 11:00 am. Please join us as we address the Autism challenges faced by our Underserved populations in our county.

Discussion Notes:
• The committee supported the amazing graduate occupational therapy students from Dominican University as they revealed the draft of the Asperger Resource Directory they have prepared for the Marin Autism Collaborative Web Site. These wonderful students held several focus groups around the Bay Area, including Matrix Asperger Support Group, an Autistry Student forum, ASSCEND support group, College Internship Program and the Marin Autism Youth Committee members, identifying current resources for people with Asperger and current gaps in services. This directory is planned to be our web site in June. Thanks so much!
• The committee then took on the task of defining Underserved in Marin. The answers were interesting (see below). We all agreed that we needed to expand our committee adding representatives from the county that can help us identify the challenges the Underserved with the challenge of autism. Matrix will be adding a Spanish speaking member to the committee, Penny Valentine with the SELPA will be adding a member to the team in the fall, the Occupational Therapy Department at Dominican will be adding graduate students who are bilingual therapists and Karen will be connecting with the Hispanic Chamber and the regional center for additional members who could offr expertise.
a) Low income
b) Children of color
c) Isolated families
d) Financially challenged
e) Emotionally challenged families
f) Language Barriers
g) Foster Care children
h) At Risk children
i) Homeless
• Karen reported that she connected with Areva Martin (www.specialneedsnetwork.net) , a member of the Autism Blue Ribbon Commission for California and that shehas agreed to offer help as her focus for the commission was the Underserved and she has been developing projects in the Los Angeles area addressing these needs.
• The committees talked about the potential of having Areva do a keynote next year on this area.
• The committee spoke about getting Marin City area involved, Marin Clinics Involved and Head Start and the Community Centers involved in addressing ASD in the underserved.
• The Committee agreed that holding our meetings next year at the Marin Connection Center could encourage key additional participation from members of communities that can help us address this area of need.

Many thanks to all of you committee members who supported the Youth Autism Sub-Committee this year. Your time and input is appreciated. It is my hope to see a great group come together in September to tackle our next area of concern in our county. THE UNDERSERVED.

Have a great summer,
Karen Kaplan

PS
• Be on the lookout for the 4th Annual Lecture Series registration. It is going to be a great series of 8 lectures.
• Save the date for the 3rd Annual North Bay Autism Resource Exposition, September 17, 2011 at Dominican University

Good Resource for Parents and Professionals on Autism

April 28, 2011 By: admin Category: Resources for Parents, Resources for Professionals

This seems to be a great resource for parents and professionals seeking information and resources about autism. Check out Autism College.

New Social Skills Workbook for Teens

April 28, 2011 By: admin Category: Resources for Parents, Transition Sub-Committee

The Social & Life Skills MeNu book by Karra Barber-Wada

MAC Annual Meeting Welcomes Dr. Peter Mundy

April 28, 2011 By: admin Category: Early Years Sub-Committee, Research on Autism, Resources for Parents, Resources for Professionals, Transition Sub-Committee, Youth Sub-Committee

The Marin Autism Collaborative held its 2011 Annual Meeting on April 2 at the Marin County Office of Education. Dr. Peter Mundy, from the UC Davis MIND Institute and the Department of Education, spoke on “Social Attention Impairments in Autism.”

Dr. Mundy provided a comprehensive history of autism and the role of joint attention as an indicator of autism and social impairments. Joint attention is a pivotal, gateway behavior, as it plays a key role in learning. Problems in joint attention lead to difficulties in learning both language and social skills. Dr. Mundy then went on to discuss the research-based interventions for school-age children and older children. There is still much work to be done in this area and Dr. Mundy is currently working on a virtual reality research project to help children and young adults learns these skills in a simulated environment.

For more information on the talk, contact Katrina Ferreyra, MAC Coordinator, at kferreyra@lifehouseagency.org.

PBS Airs Special Series on Autism

April 28, 2011 By: admin Category: Advocacy, Early Years Sub-Committee, Research on Autism, Resources for Parents, Resources for Professionals, Transition Sub-Committee, Youth Sub-Committee

In case you haven’t seen it, it’s worth viewing the many great interviews and news clips from PBS this month!

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